What came before “CONCORD2”?
The CONCORD2 study builds on the work and findings of the first CONCORD study into the COordiNated Care Of Rare Diseases
What did CONcord find?
The CONCORD study looked at how care services for people with rare conditions are coordinated in the UK, and how people affected by rare conditions and healthcare professionals who treat rare conditions would like them to be coordinated. It was a collaboration between patients and carers affected by rare conditions, healthcare professionals with expertise in rare conditions, and health services researchers.
Full study report
Morris S, et al. Coordinated care for people affected by rare diseases: the CONCORD mixed-methods study. Health Soc Care Deliv Res 2022; 10(05)
More information
Information on the CONCORD: CoOrdiNated Care of Rare Diseases project
CONCORD NIHR funding award
Research findings
Walton H, et al. Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study. Orphanet Journal of Rare Diseases 2022; 17(171)
Walton H, et al. Development of models of care coordination for rare conditions: A qualitative study. Orphanet Journal of Rare Diseases 2022; 17(49)
Simpson S, et al. How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study. Orphanet Journal of Rare Diseases 2021; 16(76)
Walton H, et al. Defining Coordinated Care for People with Rare Conditions: A Scoping Review. International Journal of Integrated Care 2020; 20(2)